Please remember that we cannot guarantee the confidentiality of any information sent by e-mail.
Monitoring Disparities in Chronic Conditions - Frequently Asked Questions
- Who do I contact if I have any questions?
- How did you get my address?
- How do you protect confidentiality?
- What conditions are you researching?
- How can I participate in the study?
- What is involved in participating?
- I received a web passcode in the letter sent to my house. How do I use it?
- I did not receive an opt-in card in my recruitment mailing. How do I participate in the study?
- What kinds of questions are on the surveys?
- What will be done with my personal information?
- What are the benefits of participating?
- Are there any risks?
- Why am I being contacted twice about Phase 2 of the study?
- Why are you asking for my social security number?
- What data sources will be linked using my social security number?
- How are the University of Washington and Public Health – Seattle & King County involved in this study?
We randomly select households using a commercially available list of addresses and send letters asking people if they would like to participate.
We also ask local hospitals, clinics, and physician offices to mail information letters to patients with one of the health conditions we are studying. To do this, they searched their databases to find patients who had the conditions we are studying. These facilities may mail the letters directly to their patients or work with the Institute for Health Metrics and Evaluation (IHME) to mail these letters. The letters to patients contain an “opt-in card” for the patient to return indicating his/her approval to participate in the study.
The research team at IHME will then contact the patient using the information provided on the opt-in card to enroll him/her in the study. IHME has no access to the patient medical record. IHME will only contact the patients who returned their opt-in cards using the contact information provided on the card. These measures are in place to ensure the privacy and confidentiality of all patients.
The study does not always have a phone number for potential participants. If you are someone for whom we do not have a phone number, your letter will give you the option of simply logging onto a survey on the web. Go to the web page provided and enter the unique web passcode shown in your letter.
Some people will receive a letter asking them to participate in the web survey only. If you are one of these people, you will not receive an opt-in card and your letter will include directions for logging onto the survey on the web. Go to the web page provided and enter the unique web passcode shown in your letter.